Hashimoto’s sounds like a weird bomb or a factory out of Japan. Come to find out it was actually the autoimmune disease that was stealing my life.
After spending months, unable to function at all, no exaggeration, I went in for my last appointment before I gave up hope completely.
When you go to several doctors and you hear, “I’m sorry we didn’t find anything, did you think about speaking to a therapist?” you start to think that maybe you are just imagining it all. You should just stop wasting everyone’s time. Get up and get it together was the thought that was creeping into my mind constantly. I had absolutely no hope that he would have anything different to say to me than the other doctors.
Later that afternoon I get a phone call from my doctor telling me that my thyroid antibodies are through the roof and that my TSH is so high he doesn’t know how I’m not in a coma in a hospital. I was lucky.
My new doctor had a hunch so he had my labs rushed. If not for that doctor today I may not be here. At least according to him. I had a goiter the size of Texas on my thyroid but somehow with all the other stuff it just wasn’t something I noticed.
I was lucky to find that doctor thanks to a friend with a suggestion. He called in a prescription for a medicine that no one else was really using and I picked it up. Within a month my body had already responded tremendously. I was starting to enjoy my life again.
Finally, I was able to enjoy my family again. I loved being able to spend time with my son who at this point was 6 months. He was starting to become very active. Before I spent all my time laying on one piece of furniture or another trying to find the energy to get dressed. I spent time with him and it was easy until he started to become more active because it was harder to keep up with him.
Now I was starting to enjoy crawling around on the floor and really enjoying all the new things he was learning. With more energy I was starting to become the mother I had hoped to be. One that participated instead of watched from the side.
I was hiking again and spending time with my husband. I was able to cook again and have friends over. Finding out that I had an autoimmune disease changed everything for me. It’s that way for everyone. Not everyone reacts the way that I did. I decided I wouldn’t let it run my life, this of course after the newlywed period wore off and the fluctuations in how I felt crept in.
After endless amounts of research I decided that I would not let hard days keep me from enjoying my life. I was not going to miss out on my life anymore after I had tasted freedom from that hell. So I did whatever I had to to make those hard days/weeks show up less often. I did not give up and I still haven’t. Changing everything from my diet to my lifestyle made a huge difference and with every little change I realized that I could take my life back.
Autoimmune diseases drain you. They steal the light from your eyes and the life from your body. I was 21 and I couldn’t function at all. Not being able to enjoy the things I once loved tore me apart. Forcing myself to get up and go only to be bed bound for days after. Everyone around me was starting to think that I was faking it for attention. I had no way of explaining what was happening to me because I didn’t even know.
The same thing may be happening to you. Just know that if you don’t give up looking for answers eventually someone will finally see the problem. At three other doctors’ offices, I had my labs run. Those showed that I had antibodies but for some reason none of them told me. None of them said a thing.
I’m not here to push my choices on you but I am saying don’t give up. Do not let this life tear you down and make you think you can’t live anymore. There is a treasure trove of information out there if you’re willing to find it. Just about anything you want to know you can find it and there are so many people that will support you and be an asset to you.
You will get answers if you don’t give up. Turn to your faith if you have one because that helped me out so much!
There are so many different autoimmune diseases and I hope that through this blog I can bring awareness to them. This is just a part of my story and honestly only a small part about my diagnosis. I would love to hear your story or any part of it that you want to share.
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